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Safety perception in patients with advanced idiopathic Parkinson’s disease – a qualitative study
Background: A fundamental cornerstone of quality of healthcare is patient safety, which many people with life-limiting illnesses feel is being compromised. Perceptions of impaired safety are associated with the occurrence of psychological distress and healthcare utilization. However, little is kn...
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| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Philipps-Universität Marburg
2023
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| Subjects: | |
| Online Access: | PDF Full Text |
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| Summary: | Background: A fundamental cornerstone of quality of healthcare is patient
safety, which many people with life-limiting illnesses feel is being compromised.
Perceptions of impaired safety are associated with the occurrence of psychological
distress and healthcare utilization. However, little is known about how people
with idiopathic Parkinson’s disease (iPD) perceive their own safety toward the end
of life. The aim of our study was therefore to investigate factors that influence the
perception of safety of patients with advanced iPD.
Methods: We conducted semi-structured interviews with a purposeful sample
of 21 patients with advanced iPD. Participants were recruited at the neurology
department of a tertiary care hospital in Germany between August 2021 and June
2022. Data were analyzed using reflexive thematic analysis.
Results: iPD-patients reported relevant impairment of their safety. While most
participants expressed safety concerns based on the manifestation of disease,
our analysis identified enablers and barriers to establishing safety in patients with
advanced iPD, in 10 additional domains: relationship to the disease, informedness,
self-perception, utilization of support and care structures, healthcare professionals
and structures, treatment, social interaction, social security, spirituality, and
environment.
Conclusion: This study provides new insights into safety perceptions of
patients with advanced iPD, which extend well beyond the physical realm. The
findings suggest that clinicians and policy makers should consider a holistic and
multidisciplinary approach to assessing and improving patients’ safety taking into
account the enablers and barriers identified in this study. |
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| Item Description: | Gefördert durch den Open-Access-Publikationsfonds der UB Marburg. |
| DOI: | 10.3389/fnagi.2023.1200143 |