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Supporting Relatives Prior to Caregiver Burden - Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study
Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program f...
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| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Philipps-Universität Marburg
2022
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| Subjects: | |
| Online Access: | PDF Full Text |
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| Summary: | Research on support for relatives of patients with Parkinsonism has mainly focused on
caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this
multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support
program for relatives of patients with Parkinsonism. It specifically focuses on family members of
patients who are in an early phase of the disease, are not currently caregiving, and have not yet
developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological
short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the
demand for an early, low-threshold, and low-cost short intervention and to collect feedback based
on qualitative and quantitative data of N = 20 relatives. Secondary objectives are an evaluation of
the effects of the intervention and an analysis of the study design. Future directions are to further
develop the PPSI using these data. This study can serve as a basis for future randomized controlled
studies on this intervention, which might fill an important gap in clinical supply. |
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| Item Description: | Gefördert durch den Open-Access-Publikationsfonds der UB Marburg. |
| Physical Description: | 13 Pages |
| DOI: | 10.3390/brainsci12040442 |